Telecare and self-management: a guideline for anticipating future care in scenario-based design

An important aim of telecare technologies for chronic patients is supporting self-management. Although patient involvement is crucial for successful implementation, any adaptation of telecare systems to needs of users requires explicit reflection regarding which form of self-management it should support. Scenario-based methods (SBDs) are proposed to involve users in the earlier phases of development. This paper aims to extend SBDs by incorporating explicit exploration of self-management forms. We first analyzed what self-management forms were inscribed in the design of a telecare system for COPD patients. These were mainly based on compliance to medical treatment. However, our study shows that many patients thrive better on selfmanagement based on cooperation and concordance with healthcare professionals. To overcome this discrepancy between design and use practices we developed a guideline enabling designers to anticipate and reflect on which form of self-management is desirable to incorporate in the design of telecare technologies for chronic patients.